#11
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Quote:
I'm right in the middle of the study now, and get my first dose of treated stem cells on 11-14. I'm hoping for the best! Thank you again for all you did for me, and I hope life is treating you well! |
#12
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how are you
Hey tony
I came across this on the news and wasnt sure if it is the treatment you had with stem cells. There is a navy pilot with ALS being treated with a an experimental drug called murone.He had lost his ability to speak but has since regained the ability to speak with this new procedure. He can also pull himself up and out from a wheelchair. The company who was responsible for this is called the Goldwater Institute Its under a new program signed into law by the president called "The right to try law". The pilots name is Matt bellinski his facebook is Facebook/@matt bellinski.7 It seems promising. Not sure if this was the trials that you were in, but figured you might want to look into it? Thinking of you often, take care and God bless. John R.
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All this,just for a boat ride |
#13
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BigE - was this the article?
https://www.bloomberg.com/news/artic...s-it-s-working http://www.brainstorm-cell.com/patie...inical-trials/ For information on enrollment in the NurOwn® phase 3 trial contact one of the clinical trial sites for details and screening. Locations: United States, California University of California Irvine Alpha Stem Cell Clinic Recruiting Irvine, California, United States, 92697 Contact: Robert Zhou 949-824-3990 stemcell@uci.edu Principal Investigator: Namita A. Goyal, MD Tony - Looks like you had 2 treatments from your facebook page. Are you seeing any changes? |
#14
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Yes, Thanks Big.
that was the article. I originally saw it on the Stewart Varney show on Fox Business network.I know that I saw it featured on Bloomberg as well.
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All this,just for a boat ride |
#15
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Tony - Looks like you had 2 treatments from your facebook page. Are you seeing any changes?[/QUOTE]
Yes, this is the trial that I'm in, and unfortunately it hasn't shown any positive results for me so far. It's a double blind study, so I may be getting the placebo, but there's no way to know that. I continue to stay positive and hope for a breakthrough. I would dearly love to use the boat again this summer! Thanks for thinking of me! |
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